Well, the day is finally here! I have officially hit 100+ days post- embryonic stem cell treatment for Lyme Disease. I cannot believe it has already been that long. It has had some ups and downs, but overall such an amazing experience so far. I am looking forward to what the next 100 days have in store for me!
How is my health? I’d say when I started treatment on June 5 I was functioning at about 25%. I was beyond exhausted. It was taking me more than half my spoons to just make it out the door for work in the morning. My brain was running way behind; my comprehension and processing time were horrific. It was like I had a brain full of mush. I had pain in almost all of my joints, along with inflammation. I was shocked if I could wake up and move my fingers into a fist in the morning. I couldn’t eat. My stomach rejected most of what touched it. I was nauseous most of each day, and when I wasn’t nauseous, I was experiencing stomach cramps like you wouldn’t believe. Anxiety and bouts of depression ran my life. I was having panic attacks on my way into work for reasons unbeknownst to me. The list of symptoms goes on and on, but these were the ones that bugged me the most.
Notice how I said bugged there?
Fast-forward 100+ days. Things have definitely improved. My good days outweigh my bad days 10:1. The nausea and stomach cramps have completely dissipated. Most days, I even have an APPETITE! Didn’t know my body could do that anymore. Inflammation and achey joints are significantly less, thank goodness! My comprehension is getting there. I am reading for fun again! I am taking it slow, doing a chapter or so a night if my mind is feeling up to it, but the fact that I am reading in general is pretty amazing. The brain fog is gone most days, and my fatigue is still there, but not half as bad as it used to be. I wake up every morning and do yoga to get my mind and body in the right shape to go work a full day with my kiddos.In the past, I was lucky if I got on my mat once a month. I feel my body getting stronger for the first time in almost four years!
Do I still have rough days? Make that weeks. Yes. It is a roller coaster ride when it comes to post-treatment with embryonic stem cells. It is not a quick fix. I went down the rabbit hole during the last full moon and was convinced I was getting worse because of a new pain and lack of appetite. Why does the full moon always screw me up? I know I am not the only one in that boat. I give myself a pass every once in a while when I get to these crazy emotional points since I have been pretty good at holding it together throughout this whole ordeal (not to toot my own horn or anything). Things I have learned on this journey: you need to maintain and make sure that you’re following a well-balanced diet, as well as taking care of your body, mind, and spirit. Self-care has become my new favorite thing (which is why I have not been posting as much as I should be…sorry!) It is okay to say NO sometimes. It is actually quite freeing. Try it. Give yourself grace over anything else. Be patient and loving throughout your journey. Your body is a temple that is really trying hard to help you, not hurt you.
In other news, I have started an Etsy shop full of my favorite essential oil roll-on blends to help go towards paying off my treatment. Please stop by and see if there is anything that you or someone you know needs! In any case, please give it a favorite so I can get some more traffic on that puppy. Mama wants to pay this loan off sooner rather than later!
I love and appreciate each and every one of you. Thank you so much for following me on this journey. You do not need to sacrifice your time reading my streams of consciousness, but you continue to show up for me and it means the world to me. I will continue to keep you updated on how I am doing!
As always, please excuse typos. Still healing that brain of mine!
2 thoughts on “100 Days Post- Treatment”
Thank you so much for sharing your story! As I heal from chronic Lyme it helps me a Ton to know what other people are conquering & even still struggling with. My ESC experience seems similar… major gains in the gut & brain department. But ups & downs that don’t necessarily corespond to anything.
Wow look at those words….!!!! Definitely big improvements like that. Hives may drive me nuts but my ‘nuts’ is Way more Dealable nowadays!
I’m so excited we have these new tools & I hope with all my heart they last & can heal many many more. Thrilled for you & excited to read back on your site!
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